Health (2)

Road to Recovery

nebulizer, sick, bronchitis, Nicole Bullock, silly

Blogging under the influence of Albuterol

Thank you for all of your well wishes, tweets of concern, and blog comments of sympathy. It’s been a tough few days. I’m prone to all sorts of lung nastiness (asthma, bronchitis, pneumonia, random bronchospasms) and this week has been quite an experience. I finished up my Z-Pak today, have decreased my nebulizer treatments from every 4 hours to 1-3 per day. I still have a pretty wicked “walrus bark” cough, but I voluntarily left my house today….in CLEAN clothes…in PUBLIC…for THREE HOURS. Tomorrow I’m going up to SLC for the Seth Godin Haiti Benefit luncheon, and I hope to not “huff, puff, and blow the house down.”

I met with my primary care doctor yesterday, who diagnosed me with “ick” in my lungs, and “ouch” in my back. I left the office with orders for a nebulizer machine purchase, and an MRI on my back. It’s been 8 weeks since I threw out my back shoveling snow, and I’ve given up on my quirky podunk physical therapist. Depending on the results of the MRI, it could be anything from “be patient and take it easy” to pain injections and/or surgery. When I’m laying around the house all day (like I have with this bronchitis garbage), my back isn’t so bad. But when I get antsy in a messy room and compulsively organize….you get the idea.

At times like these….it makes me really appreciate the times when I am healthy.

The First ER visit of my 30s

First off, I had an awesome birthday. And an awesome time Saturday at the #SLCTweetup. Sunday was a tough day.

The morning started out in a wheezing coughing fit. I went to urgent care as soon as they opened. After a quick exam, a listen to my lungs, chest x-ray, and review of my health history, the doctor diagnosed me with “bronchitis with reactive airway inflammation.” He gave me some narcotic cough syrup for the cough, and Advair to restart my maintenance asthma regimen. I spent the day in bed, coughing and wheezing. It felt like my chest was on fire.In the early evening, Taylor and I were laying down and talking. To ease my shortness of breath, I took another puff of Albuterol, which set me off in a coughing fit. After coughing so hard that I couldn’t control bodily functions, my breathing was sporadic enough that Taylor hauled me off to the ER. 15 minutes later, I stumbled into the Mountain View Hospital ER waiting room, with feet numb from lack of oxygen. The ER staff pulled themselves from the Super Bowl, plopped me into a wheelchair, bypassed triage, and took me to bed. They helped me peel off my clothes, dressed me in a gown, and started my examination. My pulse-ox was at 91 and I had a fever of 102.5*. Within 45 minutes, chest x-rays and nasal cultures were done, breathing treatments and steroids administered, and I was finally feeling some relief. They confirmed that my illness was not caused by influenza or H1N1, and concurred with the earlier diagnosis of bronchitis. They gave me a prescription for Z-pak, and told me to get lots of rest. I was in and out in 2 hours. That’s the way an ER visit should be.

Sounds dramatic? To be honest, I’m used to all the lung drama. I’ve mentioned my “organ recital” of medical history in a previous post. I’ve talked about how I got pneumonia after an accidental spray paint inhalation. I’ve talked about how I was “poisoned” at work from inhaling an industrial strength aerosol chemical. If something you can breathe in exists that can make you sick, I’m susceptible to it. This nasty Utah inversion air? Makes me sick. When I say I’m dealing with “SOB,” I mean shortness of breath.
I’ve had asthma since I was 11. I have sleep apnea. I’ve seen pulmonologists in 4 states. I have tried most of the inhalers on the following chart:
But as I went through my old posts, I realized that I never blogged about my biggest lung condition of all, Acute Respiratory Distress Syndrome. ARDS is a life-threatening lung condition that prevents enough oxygen from getting into the blood, typically resulting from trauma or sepsis. I survived it after three weeks on a ventilator. Would anyone like to hear my story?

Dental Drama and PT Pain

The past few days have been somewhat miserable for me. Anyone who’s read my blog for a while knows that I’ve had a ridiculous about of dental work and other tooth woes: crowns, root canals, periodontal work, the Cerec fiasco, etc. Last week I went to a new dentist, who informed me that two recent crowns would have to be replaced due to shoddy work, and one would need an implant. He also suggested to crown a molar that had an old gigantic amalam filling. I was bummed that I needed to have so much recent (expensive) work replaced, but I’m kinda used to it.

On Sunday night, after returning from my quick trip to Florida, my upper left gums and molars started throbbing. I was in an immense amount of pain, and I had no idea why (because all of the work scheduled was on my right side). Through the night, I used Orajel, Lortab, and many ice packs to try to take down the pain level. Between 2 am and 8 am, I only dozed off a few times because I hurt so bad. Despite my perpetually sore back, that pain had NOTHING on my jaw.

I called the dentist’s office as soon as they opened, and they got me in a few hours later. After a round of x-rays, he informed me that I had 4 abscessed teeth, with infection permeating both my upper and lower jaw. The two worst teeth were ones that had ceramic crowns, so he drilled them and did two pulpotomies. He handed me a prescription for Amoxicillin and told me to come back on Thursday to complete the root canals. He hoped that the other infected teeth would improve with the antibiotics, and would not require invasive treatment.

Over the past three days, I’ve been miserable. Not only was I dealing with the dental drama, I had a little mishap at physical therapy on my back. I finished an hour of electrostim and traction, and as I sat up, my hip popped about 3 cm out of place. My physical therapist did some manipulation and nearly and hour of electrical ultrasound to get me to the point I could walk. I still feel like a disconnected insect. Or a bowlegged cowboy.

Luckily, Taylor was home for a few days to take care of me. He replenished my ice packs, made sure I took my meds on time, prepared soft foods and offered general support and entertainment till he had to fly back to Memphis yesterday. Just before heading up to SLC to drop him off at the airport, I started getting a fever and body aches. By the time I dropped him off, my fever was up to 103*. My face was so hot, I felt like I could fry an egg on it. Something tells me the Amoxicillin wasn’t strong enough.

I have my appointment for the root canals this morning, right after the office opens. I have a sneaking suspicion that they will postpone the root canals, and send me straight to Urgent Care.

Healthcare Rant: When Quality Care Goes Wrong

As I’ve been dealing with many difficult health issues this past year, the U.S. healthcare reform debate has fallen below the Nicole radar. It surprises me that I’ve avoided it, as my career is in healthcare administration. I know it’s an important time in my field, but seven months of unemployment have kept me out of the trenches. Despite a very concerted effort, I have not been able to find work in my field. Although I have skills that would be portable to many other fields, I don’t want to give up what I love. I believe that quality care should be available to all people, regardless of their ability to pay. While it’s true that many healthcare organizations offer charitable care to the needy, it seems like many people in need fall through the cracks.

I am currently insured through my husband’s employer on a plan with Cigna. The plan provides excellent benefits at a low cost for in-network providers. I am extremely lucky to have $5-10 copays, and very reasonable coinsurance. Unfortunately, the Cigna network has been fairly limited in both the Atlanta and Wasatch Front areas. In Atlanta, I couldn’t use Emory facilities in network (while working for Emory, and promoting their Campaign Emory fundraising). In Utah, 90% of Intermountain Healthcare facilities are out-of-network for Cigna. This is frustrating to me, as I’m a previous 4.5-year employee of Intermountain. I believe in their Mission, Vision, and Values, and want to support them with my healthcare dollar.

My previous positions with Intermountain were as an assistant to a medical director at LDS Hospital, and as a Patient Service Rep in Accounts Receivable Management. I have also worked for City of Hope Cancer Center, Prime Healthcare Services, and University of Michigan Medical Center. I have experience in customer service, billing, coding, transcription, Joint Commission an AOA accreditation, physician credentialing, training, research, and have processed countless financial assistance applications. I have participated in executive-level hospital management meetings. Although I am not an expert by any means, I can confidently say that I am qualified to have an educated opinion on what works in healthcare, and when healthcare goes wrong.

Case in point: My daughter Rosie has been sick for a few weeks with kidney problems. My otherwise lively child has been mopey and lethargic, and complains of pain daily. On Christmas night, Rosie was very sick and begged me to take her to the hospital. We left our family holiday party an drove to the IHC Provo Instacare (which is in-network with Cigna). I advised the Instacare registrar that I had submitted a financial assistance application to the Lake Park and Creek Plaza billing offices a few weeks prior, and was unable to pay a copay. The Instacare flat out refused to see her without a copay…so I ran out to the car, grabbed a Christmas card, and paid her copay with the Christmas cash I got from my grandma. And what happened then? They took her blood, scanned over the results, and told us to go across the parking lot to the Utah Valley Regional Center Emergency Room immediately (which we later found out was out-of-network).

The ER registrar was a little nicer, especially when I brought along the copy of my recently-completed financial assistance application. We sat in the ER waiting room for over an hour, and spent a few more hours in the ER room 9 (which had a broken recliner, and no other chair available). After 4 hours, they said her urinalysis showed that she had inflammatory cystitis. If the Instacare would have taken 5 extra minutes to take her urine, she could have gotten on antibiotics and saved us a 4-hour ER visit and copay.

When we arrived at Instacare, it was a few minutes before they were closing at 9 pm. They happily took us back to the room, but pushed us back out the door in 5 minutes.My question is: “If they were going to send her to the ER, why did they take my gift money to pay a copay for a “visit” that didn’t really end up being a VISIT?” Luckily these visits happened before the end of the year, because we’d already met our deductible. Had this happened a week later, we would have been slammed with deductible fees.

A few days later, Rosie had another ER visit. Her symptoms had worsened, she had a high fever, and I drove her back to the UVRMC ER (still not knowing it was out-of-network). The doctor wasn’t sure why she was in so much pain and guessed that she had kidney stones or appendicitis. He ordered an abdominal CT scan to see if the problem was GI or urinary. After 3 more hours of sitting on room 9′s broken recliner, we found out that her scan was fine. Rosie got a pain pill, some “orange pee” pills, and a stronger antibiotic. Since then, we’ve been following up with a non-IHC pediatric urologist and she’s doing much better.

I was going to just sweep this experience under the carpet, but then earlier this week I received several IHC financial assistance rejection letters. Besides the recent hospital visits, I had some outstanding bills from all of my sleep apnea visits. Apparently we are slightly over the National Income Poverty Guidelines (remember my husband is a struggling regional airline pilot?) Despite our unmanageable debt from student loans and my 7 months of unemployment, we do not qualify. When I called the billing offices to get more information, I was told that our income was slightly too high, and our balances were not high enough for them to make an exception. Gee thanks.

I know I’m not the only person to have an experience like this. After going through it personally, it has really lit my fire to get back into a position where I can help avoid situations like this. I’m going to keep working on my medical coding certification, which I’ve been working on from home to keep myself busy while looking for work. It’s time to make my voice heard. I’ve been in both hospital management, and also at the receiving end of a “charity” denial. I hereby recommit my effort to apply for all the positions I am qualified for. I need to be a part of my field again.

Not a pain in the neck, more like a pain in the butt!


Two weeks ago, I was shoveling snow in my driveway. We’d gotten about 11 inches of snow, and had let it sit for a day. Once I picked up a scarf, hat, gloves and some snow boots from DI, I went to work clearing a path for my car in the driveway. After about 45 minutes, I mightily thrust my shovel into a section of snow that was actually rock hard ice. The shovel didn’t move from the point of impact, but I wrenched my back in the process. Ironically, this happened while my husband was in the warm house playing XBOX.

I’ve been pretty miserable since, utilizing ice packs, heat, and lots of Motrin. A few days ago I decided to try shoveling again, and my back flared up even more. I happened to find out that my neighbor is a physical therapist, and he evaluated me. It appears I have a “bulging L4-L5″ with “S1 dysfunction.” He poked and prodded me while ordering me into uncomfortable positions, gave me a lengthy list of exercises, and forbade me from shoveling snow, loading a dishwasher, vacuuming, or any other rotating repetitive movement for 4-6 weeks.

So….how should I bribe a Deacon to shovel my driveway for the next 6 weeks?

Momentum

Three weeks ago, Taylor and I signed up for a gym membership. My health’s been better recently and I’m feeling motivated to lose weight again (especially looking at myself in all those London pictures). In the past 11 days, I’ve had 7 cardio workouts. I started out barely being able to hang on for 25 minutes, now I can make it through 40 minutes. I haven’t done much weight training yet, but I’ll incorporate it fairly soon. I got a freebie session with a personal trainer and went over some suggested exercises, and did a health profile. I’ve been feeling more energetic, my clothes fit a little better and am motivated to stick with this.

Despite the newfound motivation, I’m frustrated. I stepped on the scale and I’ve gained 7 pounds in two weeks. Everyone gives me the “gaining muscle mass” excuse (which I think is partially true) but it’s still disappointing. On the whole, my eating has been really healthy; lean meats, fruits and veggies, whole grains, etc. I’ve splurged a few times, like cupcakes and sweet potato fries, but my portions have been MUCH smaller than the last few months. I hope I’ll be able to take off weight (or at least not gain anymore) as the holidays (and holiday food) will be present for the rest of the year.

Spray Paint and Pneumonia


I.
AM.
SICK…
MISERABLE.

I am splayed out in bed, feverish, coughing, and my lungs are on FIRE. I’m dosed up on antibiotics and steroids.

It turns out that I have a pneumonia, but I was a little surprised.

Rosie and her new (older) friends found some cans of spray paint in the basement, and went to town with a large canvas. I smelled something strong, and I thought it was finger nail polish. I asked Rosie, and she lied and said it was. I turned on some fans and attempted to air out the house, but the smell wouldn’t go away. The next morning, I had a sore throat and cough. The scent lingered all day. I glanced through the bathroom and Rosie’s room, as the fumes were as strong as an open bottle of nail polish. I checked out the basement, and nothing looked out of the ordinary. A few hours later, I was having slight shortness of breath. I grabbed my inhaler and felt marginal relief. I took a nap, and then checked every room in the house. I saw a wet spot on a piece of cardboard, and sniffed it. It was the smell! Then I turned around and saw a big 5′x5′ work of spray paint art.

That evening, my friend Esther came over to spend the night. We went to Provo for a couple of hours, and when we returned the scent wasn’t quite as strong. We joked that we were getting high off the fumes, but I really didn’t feel great. By morning, the cough had worsened. I decided to take it easy for the day, and hopefully feel good enough for the Oquirrh Mountain Temple dedication at 3 pm. I was able to supress my cough enough to be in public, so we went to the stake center. I started to feel better. When we got home, the smell was lighter…like Sharpies. I was fine for a few hours, but then the cough came back with a venegeance. I was freaking Rosie out with my monster cough, and she begged me to go to InstaCare.

I arrived around 7:30 pm, and had my vitals checked. I had a fever of 101.2, and my pulse ox was 95 (slightly decreased, but still normal). I explained my symptoms to the doctor, had blood drawn and two chest x-rays. I started getting the chills, and my temperature increased to 103.3. The x-ray showed evidence of the first stages of pneumonia. The spray paint fumes obviously irritated my lungs, but it actually helped catch the pneumonia before it got worse. He said there has been an increase of cases in pneumonia in Utah County this month, and with my history of asthma and ARDS, he didn’t want to risk things getting worse. He sent me off with prescriptions for Z-Pack and prednisone and urged me to get them filled right away. But since it was after 9 pm on a Sunday night, no pharmacies were open in Spanish Fork or Springville. I had to drive up to Provo for the closest 24 hour pharmacy.

This morning I feel worse, but the smell in the house has improved. I’ve been coughing so hard that the muscles in my chest and back hurt. I’ve got a fever for sure, but can’t find a thermometer. I’m going to take it easy today, especially because my husband flies in tomorrow. I’d hate for the little time I get to spend with him to be watching me hack up a lung and lie in a fetal position.

Didgeridoo for Sleep Apnea???


Ever heard of a didgeridoo? I read a very crazy news article from Reuters this weekend that talked about how regular didgeridoo playing can help with sleep apnea:

Reuters
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Regular didgeridoo playing reduces snoring and daytime sleepiness, finds a study published by the British Medical Journal. Snoring and obstructive sleep apnea syndrome are common sleep disorders caused by the collapse of the upper airways.

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Reports of didgeridoo players experiencing reduced daytime sleepiness and snoring after practicing, led experts in Switzerland to test the theory that training of the upper airways by didgeridoo playing can improve these disorders. They identified 25 patients with moderate obstructive sleep apnea syndrome and who complained about snoring. Patients were randomly allocated to an intervention group (didgeridoo lessons and daily practice at home for four months) or a control group (remained on a waiting list for lessons). Compared with the control group, daytime sleepiness and apnea scores improved significantly in the didgeridoo group. Partners of patients in the didgeridoo group also reported much less sleep disturbance.
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The authors conclude that regular training of the upper airways by didgeridoo playing reduces daytime sleepiness and snoring in people with moderate obstructive sleep apnea syndrome and also improves the sleep quality of partners.

I’m sure some of you are sick of reading about the sleep problems that I’ve had for so many years, but how could I not share this bizarre nugget of medical research? I’ve been using the CPAP machine for the last 5 nights, and so far haven’t had much relief for my daytime sleepiness. According to my sleep tech friend Lori, it’ll be at least two weeks before I have a real marked difference in my sleep/wake cycle. I am dedicated to finding a way to finally have restful sleep, and I wonder if I’d have any luck with the didge. Course, I’m not sure I’d want to invest in the very strange instrument without renting one first, and I have no idea where I’d rent a didgeridoo. Maybe I could join an Australian Club, or hang out at the Australian Consulate’s office. What do you think, does this seem like craziness, or do you thing there’s something to it? One thing’s for sure, I could totally pull off the Aboriginal hair…after a night of the CPAP headgear, my hair look like a banchee!

Sleepin’ Sexxxy


I met with Dr. I today to discuss the results of my last sleep study. He said my daytime sleepiness is caused by sleep apnea, pure and simple. No narcolepsy, just obstructive sleep apnea. When I had the nose mask on a low airflow (6) I had about 10 disturbances per hour with snoring. When I had a full face mask on medium airflow (9) I had only 2 disturbances over several hours with no snoring. He said if I stick with this mask with a chinstrap, I should have marked improvement in a few weeks. So now I get to put on this lovely mask along with my bedtime attire. Sexy, eh?

Please pass the Benadryl

Allergy season is here…and I’m broken out in hives. At least the dogwood trees that are in bloom are beautiful. After five years of allergy shots in Utah, I’m a little disappointed that it’s already so bad for me. I am told that Atlanta will shortly have a green layer of pollen all over everything. Joy.