Health (3)

Diagnosis Confirmed

Disclaimer: I am not a hypochondriac. I am an informed employee in a health-related profession.

Have you ever had something wrong with your health, which you absolutely knew, but your doctor wouldn’t take the time to listen to all of your symptoms? And you saw multiple doctors over an extended length of time, which never went beyond the obvious symptoms and only gave you the easy answer?

Yesterday I met with a doctor who really listened. He spent a focused 25 minute on my personal and family health history and symptoms, and confirmed a diagnosis I was certain I had for nearly 6 years. He agreed that the class of drugs I’d been treated with for 13 years was not working, and apologized that I hadn’t been prescribed something different sooner. He handed me a script for a drug that sounds like something an archeologist would discover, and asked me to come back in three weeks. I have a less common variation of the condition, but it does require the same treatment. I feel some amount of peace knowing my body well enough to not accept the status quo diagnosis.

I’m not sure I’m comfortable publicly publishing what health condition I have (I know…me being secretive?!?). I will say that the doc expects the medication to help my sleep quality significantly, without any sedative or stimulant effects. It’s not life threatening nor contagious, so have no fear! I’ll get through this, will a little help from my pills.

Sleep Study Number Five

I’m just finishing up packing for my overnight sleep study over at Piedmont Hospital Sleep Lab. This will be my fourth overnight sleep study since 2004, and fifth if you include my daytime multiple sleep latency nap test. I’m deciding on what comfortable, yet accessible pajamas I can wear so the sleep lab tech doesn’t see too much (yes, there are cameras in the room and someone watches you sleep all night. Almost voyeuristic). It’s time to figure out how to fix my sleep apnea and daytime hypersomnia. Is anyone interested in a silly photo narrative of what it’s like to be the patient in a sleep lab?

Organ Recital

This is an actual picture of my chest x-ray today

At age 7, I started seeing a dermatologist for eczema

At age 11, I was diagnosed with asthma

At age 16, I had my first ulcer

At age 19, I was hospitalized for a kidney infection

At age 20, I gave birth to my daughter. During that hospital stay, I was exposed to e. Coli in the hospital, went septic, and into ARDS. I was on a ventilator in the ICU for 3 weeks. At the end of the hospital stay, I developed a blood clot in my arm (from fingertip to armpit) and went on anticoagulation therapy for 6 months

At age 21, I had my first migraine and started immunotherapy for allergies

At age 23, I was diagnosed with hypersomnia and sleep apnea

At age 28, I was diagnosed with polycystic ovarian syndrome

And I’ve basically been overweight since birth, despite numerous dedicated attempts to reduce my weight

Today I went to my new pulomonary/sleep specialist. I have been having terrible sleep luck since October. Usually, I miraculously get by with only 4-6 hours of sleep per night, typically interrupted. I can only recall a handful of times I’ve gotten more than 7 hours of continuous sleep in 4 months. I’ve been snoring like a lumberjack, much to my poor husband’s dismay. I’ve also been feeling sick for a week, and was told on Sunday at Urgent Care that it was “just a cold.” I’ve been huffing my inhaler every few hours for a couple of days, and it was a stroke of luck to get into a pulmonologist so quickly.

I did my H&P wth the PA, did a pulmonary function test, had two chest x-rays, and met with “Dr Eye” (his last name starts with “I” but I can’t remember his actual name). He said that I’ve got a pretty advanced case of bronchitis, and he was surprised that I was still working with it this bad. He reviewed my old sleep records, suggested that I resume CPAP therapy, and scheduled me for another overnight sleep study. He also strongly urged me to look into some surgical options to improve my overall health.

Oftentimes, I’ve wondered if my body was the major trial I was given in this life.

Weight Loss Blog

I decided to pick up the posting again on my private weight loss blog that I started almost a year ago. The funny thing is that I weigh about the same as I did when I started the blog in February, even though I’ve been up at least 12 pounds higher, and down 9 pounds lower than my current weight. I’m a total yo-yo-er. If you are really my friend, or really want to be part of my support system, email me or leave a comment with your email to become part of my support network.

This means you must comment and show me the love. My husband is gone all the time, and day-to-day encouragement is needed.

Inhalation Hazard

It was inevitable. Every hospital I’ve ever worked at, I’ve been a patient at. I thought I’d be getting off easy with a freebie at U of M Hospital, but I proved my precedent correct yesterday.

I was feeling a bit exhausted from Sunday’s roadtrip, but otherwise with no illness symptoms. Right after lunch, I went into the tiny closet restroom across from my office, and was floored with a terrible smell. I really needed to relieve myself, so I thought I’d quickly finish and leave. Upon the throne, my eyes, throat, skin, and lungs started burning. My skin started to blotch up. I looked up in the air, and saw little particulates dancing around. I became lightheaded and dizzily fell off. Someone had used the industrial strength disinfectant spray (for cleaning bathroom surfaces) as an AIR FRESHENER, and sprayed it all through the air.

This chemical spray, which should only be used in a WELL VENTILATED AREA…not a little closet bathroom whose fan turns off with the light. And it wasn’t like a little shot of potpourri spray, it was full-on 80′s AquaNet-like sprayage. It was as potent as oven cleaner. There’s a demon sprayer in my department (I still haven’t figured out who) and I’ve left notes before to please be considerate when using this CLEANER to “freshen”. I’m pretty sure I hit the brunt for a very recent spray. For some reason, the environmental services team leaves this aerosol in the department at all time, just because it’s kinda far-flung from the rest of the public restrooms in the building. I started using those far-flung multi-stall public restrooms, but I didn’t yesterday. I learned my lesson.

I immediately sent an email to Safety Management services, who advised me to go immediately to Employee Health. They said they’d send out an “environmental industrial hygienist” to check out the ventilation in the room. My favorite coworker walked me to the Med Inn and waited for me to be evaluated. Employee health checked my vitals, gave me a puff of Ventolin, and had me rest in the lobby for 15 minutes. Still felt shortness of breath, chest tightness, and eye stinging. They suggested that I be evaluated in the ER. So they wheeled me down, I waited an hour to be triaged, another 45 minutes for chest xrays, and finally 3 hours after the exposure got the breathing treatment.

The morning after, I still feel yucky. My eyes still sting, my breathing is slightly labored, and I really don’t feel like working. However, I’ve got a dentist appointment this morning that I have to get out of bed for. They’ll be checking the tooth abscess from the root canal and see if it’s healed enough to do the crown prep. Haven’t I been through enough already?!?

Summertime Slump

I’ve been feeling like I’ve been in a summertime slump lately. I consistently feel overwhelmed, exhausted, and guilty for not keeping up on my normal obligations. My sleep has been horrible, feeling less rested after 9 hours sleep than when I first got into bed. I even tried using my CPAP machine again (for indefinitely diagnosed sleep apnea) but ended up with a horrible swollen and pus-filled boil on the bridge of my nose. I have been eating more healthily and exercising more consistently, usually 2-4 times a week. I’ve even lost 12 of the 25 pounds I gained since moving to Michigan. But I don’t feel healthy.

I miss having a large network of friends to make plans with on the weekends. The few friends we do have here usually decline our invitations. My next door neighbor and I have become friends, but she’s moving across Plymouth next weekend, so I’m going to lose the only person who feels comfortable dropping in and spending time with no notice. I’m so spent by the time I get home from work that I’m probably not much fun to be around. Having an anorexic bank account is tough too.

So, faithful blog readers…what can I do to get out of this slump?

A progressively better week

Thank you for all of your well wishes this week. I’ve been in a lot of pain, and generally under the weather, but I’m sooo much better than Sunday. I have another ultrasound in a week to determine the size and changes in the cyst. Hopefully it won’t require surgery.

Here’s a few pictures from this week:

Here’s my sweet Rosie. She’s been a good helper this week.


This is my favorite car in Michigan. It typically sits dormant in the apartment parking lot, around the corner from us. It’s rusted beyond belief, the trunk bottom has rotted out and the spare tire is almost touching the ground at this point. The whole car is full of junk…fast food wrappers, magazines, dirty clothes. It just sits there in an auto cocoon. Ah yeah!

This week was Administrative Professionals Day. I was overwhelmed with generosity from my coworkers. The doctors gave me that beautiful lavender plant and a $20 Panera Bread gift card. The thoracic research specialist gave me the other plant. The nurses and PA’s gave me some cute serving dishes and prepared a really nice lunch. It’s nice to be recognized for all the hard work I put in during the year…and this place really took good care of me.


This is me smiling at my desk.


Michigan is finally in bloom. The popcorn trees are blooming, the tulips and daffodils are bursting into reds and yellows. We’ve had a solid week of 70 degree plus temperatures. Unfortunately, it’s going to cool down again tomorrow, and we might get another snowfall. I’m hoping to drive to Holland, MI next weekend for the tulip festival. Anyone want to carpool?

My first trip to a Michigan ER…


Sunday morning I woke up in crazy amounts of pain in my left shoulder, chest, and neck. I couldn’t reposition myself in bed where I wasn’t in pain. I had light pain in my lower abdomen, but it was the chest pain that was agonizing. Knowing the warning signs of AMI (acute myocardial infaction aka heart attack) Taylor rushed me over to St. Mary’s in Livonia.

After two EKG’s, an IV, shots of dilaudid and toradol, two chest X-rays, an ultrasound, and five hours…I was diagnosed with an 8-cm hemorrhagic ovarian cyst that had ruptured. Apparently the fluid from the cyst was irritating some nerves that go into my upper body, which is called referred pain. Unfortunately, all of the pressure from the ultrasound made the actual ovary hurt even more, with more fluid leakage. I’ve been on vicodin and bedrest since I got home. I hope to feel well enough to go to work tomorrow, but for now I’m laying in bed. I’ve got a follow-up appointment with my primary care doctor this afternoon…hopefully I can muster up the energy to shower before then.

In a Pickle


Today was my second day in my department. The person training me only sat with me for one day, and today I was on my own. I booked a few surgeries, did some misc scheduling for my surgeon, took some online training modules, got my pager, attended a class, and some of my other job duties too boring to mention. I think I’ll like the position. As long as I can handle the parking situation, I’ll be sticking around UofM for a while. I purchased a yellow parking pass, which is supposed to be the closest lot to the hospital…almost walking distance if you have enough time. Yesterday I drove around for almost a half hour looking for parking. I ended up down the road at the orange lot, and took the shuttle over to the hospital and was 15 minutes late on my first day. I was worried about being late, but everyone expected it and laughed it off when I walked in totally flustered.

The funniest thing of the day was the gift that my new boss gave me…a pickle. She just got back from Disneyworld and Epcot, and gave me a shiny green pickle Christmas ornament. Apparently, pickles are a German Christmas tradition. A pickle would be hidden somewhere in the boughs of the tree, and the first child to find the pickle would get an extra gift from St. Nick for being so observant. Not sure how that translates to my new position, but my new cubicle is graced with a decorative pickle.

I’m still not better from the illness fiasco I’ve been dealing with for 3 weeks now. I finished up two rounds of antibiotics, but I think the infections aren’t gone yet. My throat still is swollen, my ears and eyes hurt, and my sinuses are tender and stuffy. I’ve been coming home from work and crashing on the bed to recover from these long workdays. At least I’m not sick like my friend Erin, who at 23 years of age came down with the chicken pox this week. My teeth are also still hurting like mad. I’ve been having these frightening, recurring dreams that all my teeth fall out while I’m giving a public speaking address. I’ve been brushing with Sensodyne again, but the nerve pain lingers. I opted for my insurance benefits and dental plan today, and pretty soon I’ll have the info to find out what dentist I can see. Until then, it’s Motrin every 4 hours for me.

Circuit City Crud, The California Conundrum, and the Sh’injury

Taylor’s new car (which we haven’t yet named, but Taylor is leaning toward the Green Goblin, and I’m leaning toward Romulus) was purchased with a very, very lame stereo. We knew that we’d need to replace it soon, because the 2002 stock stereo was literally on it’s last shorted out wire. We decided to take advantage of the President’s Day sales to buy a replacement stereo and an alarm. We price shopped online, and decided on an Ipod-ready Pioneer CD player at Circuit City. We weren’t sure about what time they opened, so after a quick breakfast at Leo’s, we arrived at CC at 10:00.

We went straight back to the auto accessories area, and found what we liked within 2 minutes. We had to go around to several departments to ask for help…and finally 15 minutes later we had a rep from the TVs department. She politely looked up what we wanted on the computer and wrote it down, but said the auto rep wouldn’t be in until 11:00. So Taylor and I decided that since the weather was bad, and we didn’t have other plans…we’d just look around for 45 minutes. At 11, a rep from home electronics came over and said the auto guy wouldn’t be in until noon, but he would look up what dash kit and harnesses we needed. He reassured us that the installation was included with both the alarm and stereo…no extra charge. The adjustment was made for the stereo okay…but then the installation came up at $80 for a $69 alarm. We were planning on around $220 for all the parts and labor, but that install fee…plus a few more parts added another $140. I had a coupon, and we also haggled down the stereo to the circuitcity.com price, and swiped the card for $312.

Unfortunately, this guy said that one part was not in stock, so we’d have to drive up to Novi (13 miles away) to pick it up, and drive it back. He gave us some shoddy directions (like incorrect freeway names and wrong exit number) and said it would be there waiting for us. We already had movie tickets (and originally hoped to have the car done after the movie), so we didn’t get to Novi until about 2:00. The customer service rep at the Novi store kinda laughed us off…saying that there were 30 parts in stock at the Westland store…and said there was no reason we needed to drive to Novi. But they called Westland to double check twice, and sent us back with a very generic, universal part that we could have picked up at Radio Shack next door.

We got back to Westland CC at 3:00, had a nasty slip on the ice, and talked with the auto audio install guy. I explained what we’d been through in the morning, how we’d driven to Novi for naught, and how the guy that actually rung us up for the transaction PROMISED the installation to be done by 7:30 PM, which is when Taylor needed to leave for the airport for his high-speed. We looked over the items we’d been rung up for…and said there was still another $20 part we needed. He let us buy it for cost, $7. We double-checked that the car would be done on time, and he said it would be no problem because we were the only install on the list for the day.

So Taylor and I went home, spent time with Rosie, iced and elevated my swollen leg, got some dinner, and arrived back at CC at 7:30. The auto guy half-heartedly apologized, saying he was the only one working, and it was his day off, and he’d been swamped. He said he was 99% sure he’d have the car done by closing time at 9:30!!! Taylor left for the airport, and Rosie and I camped out on the floor of Circuit City for the next hour and a half. We saw auto-guy talking on his cell-phone, taking several smoke breaks, leaving the install area, and generally NOT focusing on our car. I fell asleep on the floor of the store, and he shook me awake at 9:05 PM, just over 11 hours after originally arriving at the store.

So through this strenuous ordeal, we still had to pay over $100 more than the cost that it appeared to be on the website. We were shown poor customer service with 5 of the 6 employees we’d worked with in 11 hours at 2 stores. But the good news is…Taylor’s car now has a nice stereo and alarm system.

So now I’m laying on my bed, blogging about my President’s Day, with my leg elevated with an ice pack. I can walk, but it really hurts. I’ve been planning a trip to California this week, to see a Nathan McEuen show, go to Disneyland with Grant and Hollie, spend time with Lizzie and my in-laws, and enjoy the sunshine. But after trying to list on 6 oversold flights, the only flight I’m sure I can get is the one that arrives at LAX at 10 pm tomorrow. I’ll miss Nathan’s show, and it puts me into a weird, really expensive rental car time slot. Is it worth the hassle for paying $150 for 4 days of rental car, part of a day at Disneyland, and for babysitters each night I’m gone?

And that is my Circuit City crud, the California Conundrum, and the Sh’injury. Thoughts?