The last few months have really put me through the wringer, emotionally and physically. It has been incredibly difficult to go from an able-bodied, overzealous DO-er, to someone who has to accept help from others, and be satisfied with myself when I accomplish less than my usual best.
My mother has dealt with chronic pain for nearly 17 years, over half of my life. When she wasn’t able to do all that she needed to, I stepped in. I spent most of my teenage years being a nurturer, a teacher, a chauffeur, a cook, and serving my family whenever necessary. It was frustrating and overwhelming at times, but I was happy that I was able to serve. Although I never really understood my mother’s physical pain, I trusted that she was doing the best she could. I knew I had the ability to help…and I did. And still do.
Since I injured my back in December, my life has been like a parallel universe. I have little endurance and mobility. I am dependent on several medications to function AT ALL. I keep ice packs, heating pads, and “granny pillows” at hand. I go to physical therapy 3 times a week. The entire office staff at my doctor’s office know me by name. I’m on the phone sorting out bills with my insurance, hospitals, urgent care clinics, imaging centers, and medical supply companies nearly every day. I deal with symptoms that sometimes cripple my mobility, such as limb numbness from hip to toe, for hours at a time. I got my first bedsore this week. Sometimes I lose bladder/bowel function. Sometimes the cerebrospinal fluid pressure changes from the cysts in my back cause mindblowing headaches. Some days, I barely make it out of bed at all.
And this life does not suit me. At all.
I pray daily for the patience to endure my pain. I pray for the patience of my friends and family members, who are affected by my illnesses. I pray for the understanding of others, that although they may not know the particulars…they don’t judge me harshly for the things I’m not able to do. I pray that my husband doesn’t give up on me, and understands that I’m truly doing my best.
Did you hear that, world? I’M DOING MY BEST.
Please don’t give up on me. Please be patient with me. Please do not judge me for the things you don’t understand. And I’ll do the same for you.
It took a lot of coaxing. He didn’t want to get overly dressed up. He didn’t want to be matchy-matchy. He wouldn’t wear the argyle sweater I’ve been pleading for him to wear for 2 years. He wanted to go with his usual black shirt and jeans. And I had to bargain with him to put decent styling product in his hair. But ultimately, I did get what I wanted:
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